Policies are vital to translate research findings into practical, positive changes for autistic people
National policies relating to education, healthcare and access to support services can significantly impact on the lives of autistic people and their families. Development of these policies is a vital step in ensuring that research findings translate into meaningful change. At present, there is much variation in policies between European countries. We aim to identify existing autism policies, factors that improve or hinder their implementation, and any gaps in current policy across Europe. We will consider how these might be improved and harmonised.
We will collaborate with the autism representatives and the charities Autistica and Autism Europe to identify the issues that matter most to autistic people. This will ensure we include perspectives of autistic people and their families from across Europe.
Survey to explore the policy priorities of autism communities across Europe
Our research is exploring the top priorities for policy change from autism communities across Europe. The aim is to create a document to present to policy makers in the EU of the top 10 points for change.
We want to hear from YOU if:
- You are autistic and over 16 years old
- You are a parent or family carers of an autistic person who is unable to complete the survey themselves
- You are a member of an organisation working with autistic people
Spanish, German and French versions of the survey will be available shortly. If you have any questions, please contact the research team on email@example.com
We are currently recruiting for a survey-based study exploring autistic people and their family carers’ access to and experiences of a range of services across Europe and beyond (ACCESS-EU). You can read more about the study on our recruitment page and take part using this online survey tool.
The English version of the ACCESS-EU study can be accessed here: https://rebrand.ly/ACCESS-EU
Deútsch: The German version can be accessed here: https://rebrand.ly/ACCESS-EU-GERMAN
Français: The French version can be accessed here: https://rebrand.ly/ACCESS-EU-FRENCH
Español: The Spanish version can be accessed here: https://rebrand.ly/ACCESS-EU-SPANISH
Polskie: The Polish version can be accessed here: https://rebrand.ly/ACCESS-EU-POLISH
Slovene: The Slovene version can be accessed here: https://rebrand.ly/ACCESS-EU-SLOVENE
Czech: The Czech version can be accessed here: https://rebrand.ly/ACCESS-EU-CZECH
1. Map the policies that are currently in place within countries across Europe
2. Develop a 10-point action plan that aims to improve and to harmonise policies across Europe
3. Begin discussions with policy makers to develop and implement policies that support autistic people